On Thursday, April 19th at 8am I will be abseiling down the QV1 building. QV1 is the fourth tallest building in my city of Perth, at 40 stories high and just over 160 meters (525 feet) its going to be no small feat.
As part of this annual fundraising event, you need to complete a training day to assess your skills and requirements for the day as well as familiarise you with the equipment you will be using on the day.
An ostomy is a surgically created opening, where a portion of the intestine is pulled through the abdominal wall to create a stoma. A stoma simply means an opening or mouth. The part of the intestine pulled through, along with the waste it diverts from the damaged part of the intestine decides the type of ostomy. The stoma itself has no never endings so it does not hurt, this, however, is not the same for the skin around the stoma, which can sometimes sting if the right appliance is not found. Someone with an ostomy can be referred to as an ostomate or in the case of having two ostomies a double bagger. Ostomies can be permanent or temporary depending on your condition and how it came about.
Let me just say wow! Thank you social media. How times have changed, going back ten years when my journey began Facebook may have existed but not in its glorious form it does these days. The ability to reach out to others across barriers is astounding. I am so blown away by the magnitude of support groups, pages, blogs and websites that are out there. The time and effort that the ostomy community puts into supporting each other is astronomical. One of my main drivers for setting up the web page and blog was to ensure that other ostomates knew not only that there was support out there but where to find it.
I was diagnosed with Ulcerative Colitis (UC) in 2006 after continuously being run down, losing weight, having poor appetite and mood. It was kept at bay with a myriad of tablets for about a year before I started getting severe abdomen pains and continued to lose weight. After three visits to the hospital, weeks of IV steroids, 13 days awake straight and 20 kilogrammes dropped in less than a month, late 2007 I ended up in emergency surgery and received a temporary ileostomy I called Squish. This was one of the most challenging times of my life. Before UC I considered myself to be an outgoing active person and used to pride myself on being the life of the party. Now I was severely depressed and couldn’t look at myself in the mirror without crying, let alone leave the house and be social. Luckily I had some amazing friends that stood by my side (sometimes literally holding me up) even when I was pushing them away.