Travel Ostomy Style

Holidays!

Travel has always been a huge thing for me, I love visiting new places, meeting new people and getting a sense of new cultures. My husband has said on more than one occasion we would be rich if I could just curb my passion for travel but where’s the fun in being rich if you couldn’t enjoy it. Pre ostomy I had spent six months in the UK working and partying and three months in Thailand backpacking and again partying. I had planned to travel until I was thirty and then settle down with the man of my dreams and start a family. Unfortunately, my body had other ideas and I spent my mid to late twenties in and out of hospitals enduring twelve surgeries which ended with permanent ileostomy bag just before my thirtieth birthday.

No. 6: Things I wish I knew back then…

Ostomy Appliances Available

Ostomy Appliances

When you first wake up from stomal surgery you will generally wake up to a clear bag with a swollen red bud (your stoma). If you're anything like me this vision scared and even disgusted me, the anxiety of having the bag was bad enough let alone one that hung what felt like half way down my thigh and was transparent for the world to see. Some ostomates have had a pre op appointment with the stoma nurse and are hopefully aware that there are many types and options available.

No. 5: Things I wish I knew back then…

A TIc Tac Solution

That smell!

To be honest I am not sure if this even entered my mind pre-op but post-op after that first bag empty it sure did and I despondently concluded that I was going to smell like the Labyrinth’s bog of eternal stench for the rest of my life. This was not helped by the fact that my senses were on high alert and I had a flat stoma and skin issues that had resulted in a number of leaks. This combination had me convinced that every offending odour I smelt radiating from my ostomy bag, even though this is improbable if not impossible. In all seriousness though, what person with an ileostomy wouldn’t come to the same conclusion this after the myriad of smells that areis experienced while visiting the throne room. Some could no joke kill the best Strongman while others smell like they just came out of the oven or off the stove. However, my paranoia of the smell along with the itch of burning skin led me to develop an unnerving habit of continually checking and adjusting my ostomy appliances to see if they had sprung a leak. Sadly, what happens when you fidget with something you draw attention to it, which in turn triggered my anxiety and the cycle would start again.

When you’re not fidgeting you’re very beautiful. and very tall. Pretty Woman

This luckily didn’t last for ever, I found products that worked for me which in turn stopped the leaks and over time reduced the paranoia. Now to find out all things smell and the bigger question of solutions the best source of information I found was talking to other like-minded people that have been through it all before. So here is what I have compiled over my ostomy life. First off there are food products that are going to affect the output smell more than others, please note that this list is not exhaustive and every ostomate is different and therefore products will affect you differently so it’s a trial and error process. I kept a food diary for about 3-6 months after I first became an ostomate, to monitor the effects foods were having on my output.

Two Piece Deep Convex Bag Change with Brava Cap Trick

Brava Cap Trick - Deep Convex

Meet Squish!

VIDEO IN BLOG!

After posting on Insta and a few groups about a trick I use to seal my bag I was inundated with questions about that and various other points of my bag. So I was excited and a little nervous as I woke my husband to aid me in filming this video. Someone had asked me to do a video to explain the photograph, at first I thought that is a great idea and then my second thought was am I ready to show strangers squish? I had started this out aiming to help others by being a positive image and breaking the stigmas associated with having a stoma while educating those who are interested in knowing more. But when I began I had never thought I would be brave enough to share Squish but in the aid of personal growth and helping others I sucked it up and tada we made this video. It’s not perfect by a long shot but who is, it’s also not viewing for everyone as you will be exposed to my stoma (he’s actually not that bad-looking), so if you’re not yet ready to watch save it for later or if it’s not your thing just skip this post. Before you do though I must say you may be pleasantly surprised if you do watch, it’s not that scary after all. 

No. 4: Things I wish I knew back then…

The Amount of Support Available.

I know I have discussed this topic before but believe it belongs in my “Things I Wish I Knew Back Then…” series, as its high on my list of things I would have loved back when my journey began.  If you didn’t see it check it out HERE. I also, however, wanted to take some time to briefly introduce you to the ones who influenced my life and some up and coming ones that are inspiring me to do wonderful things. They are all amazing bloggers and ostomy awareness advocates, so if you do get the time check them out. Well worth your time. We all write differently and focus on slightly different issues with the same main aim, to raise awareness and help others along with ourselves through this ostomy life. 

No. 3: Things I Wish I Knew Back Then…

With A Twist Of The Bag!

Who knew that with a simple twist of the bag you can remove another little irritation of daily bag life. If you were anything like me you were taught in the hospital how to attach your appliances and once returning home followed the same process. It’s only when things go wrong do you really deviate from the norm. Now while stomal therapy nurses are amazing at what they do and they provide a wealth of knowledge, nothing can account for what you learn actually wearing the bag day in and day out. It’s kind of like what you learn at university or college versus what you learn on the job.

No. 2: Things I wish I knew back then…

Filter labels

Stickers AKA Filter Labels

As part of writing the piece on ostomy support, I joined a few of the groups I researched and one of the most common questions that I saw on my feed from a variety of those groups was what are the sheet of stickers that comes in the box with the bags? As I sit here I really can’t remember what my first thoughts were when I unpacked that first pack of ostomy supplies and saw those stickers but I’m sure it was something like the masses, what are they for and how do I use them.

No. 1: Things I Wish I Knew Back Then…

Tommee Tippee Sangenic Hygiene Nappy Bin

Bag Disposal

Ok, this is something I didn’t even consider when I was a temporary ostomate, as I refused to think about anything further than the day I was working on to save bursting into tears again. But after getting a permanent ileostomy and knowing there was no going back I started to think more about the long-term practicalities. One of these was the disposal process of the ostomy supplies. Some suppliers give you disposal bags in with your ostomy bags, I tend to save these up for holidays as they are less opaque than cheap nappy bags from the shops and I have fewer issues with a family member seeing the used bag then a room attendant. Either way, this only solved part of the problem, the bathroom bin although smelling a lot more pleasant it still filled up so fast.

SOLUTION